How to interrogate Ring 14 records

The Ring 14 Association register is a database which is gathering and supplying cytogenetic and clinical data on patients of the association affected by chromosome 14 aberrations. The register can be interrogated by means of an on-line interface that can be accessed through this login and upon sending the signed form by fax or mail to our offices.

Information stored in the Ring 14 database is available only for specialists (physicians or researchers) proving that they are currently performing studies on these pathologies and for families of patients (only for their own child), allowing a correct access to data and privacy protection.

Information stored in this database has been gathered thanks to the cooperation of the families who have sent their children’s medical records. These documents have been registered in the database by our own researcher in order to ensure correct interpretation and classification. All medical records in any form are stored by the association and can be consulted by researchers upon written request addressed to azzali.stefania@ring14.it.

Some standard statistics have been included in our home page, however the site allows you to personalize any type of further request by sending the requirements to azzali.stefania@ring14.it. These personalized requests will be processed and sent to you.

The login password will be activated and valid only for the time required for the ongoing research. Thereafter they will be disabled.

To access your password please download the FORM of the Association Ring 14, fill it in, sign and return it via fax to the number +39 (0)522 421037 or by post to the following address:
Associazione Ring14
Via Flavio Gioia 5
42124 Reggio Emilia
Italy

Upon receiving your form, we will send you the access password by email.

For further information, please contact phone number +39 (0)522 421037 (from Monday to Friday - 9am /12,30am) or send an email to: info@ring14.it.