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- Quién es ring14?
- Sindromes del cromosoma 14
- Families in the world
- Ring14 international: development of a national-based patient association towards a “global” network
- Guideline recommendations for diagnosis and clinical management of ring14 syndrome
- Guía de una madre a la buena salud y al control de las convulsiones
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FAMILIES IN THE WORLD
Ring14 is the only reference point for hundreds of families around the world: we are present on 5 continents, in 23 countries and we communicate in 5 languages. Our main goal is to help families overcome their isolation, encourage them in times of fear, give them useful medical information concerning the care of their child and try to give them hope, without creating false expectations. Thesesyndromes are very serious and dangerous: the more families are informed and aware, the more they can help their child. We are always there for them, be it online, on the phone or in person during those fun events we organize every year.
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